Tuesday, March 22, 2011

Good news

I love good news and I love sharing it so this is going to be great!  There was a bit of a miscommunication between the nurses and doctors about my weight.  The nurses informed my doctor that I had lost weight since coming here and that set off his concern over my weight.  In actuality I gained some weight since coming here, I lost a little bit of it, but I am still more than when I got here.  The blood tests that my resident ordered came back great.  All my levels are in the normal range and they are not even in low range of normal.  She said as long as I can maintain those levels I will be fine.  At one point here actual words to describe me were, "pitifully small but not malnourished".  Good to know!  I may be small but everything is as it should be!!  Maybe this will reduce a bit of the pressure that's being put on me to shovel food!! Although, I still will be trying to gain weight I just know its not going to hugely affect my surgery and recovery.  The doctor is going to start me on antibiotics for my pin site just to be safe.
The rest of yesterday was pretty enjoyable.  I got to spend some time with Angela in the morning before she left which was so good.  Then I had some other great visitors that brought me some beautiful purple tulips!  I also put up some of my cards and other stuff and now my room looks a bit more cheery!  Then in the afternoon I went outside and enjoyed some quiet time.  It felt so good out, so warm!!  I love the sun!  I've got one month left to get the sun before I won't be able to for a while so I'm going to enjoy it.  Then for dinner I got the same thing as usual but I actually had an appetite!
After dinner I went to do the girl scout activity.  Why?  I was drug down by some of the girls.  We made sock puppets, I felt like I was 10 again!  Then for the boy scout activity we made penny rings, actually all we did was find a penny with our birth year.  I do have to say I did have fun though.  I'm not going to lie, it is pretty fun hanging out with high people and it was okay because it's a hospital and they have prescriptions!

Yesterday when I was doing my bible reading I came across this verse from Proverbs 19
21 You can make many plans, but the Lord's purpose will prevail.
I really like this verse.  I have definitely come to understand how true this verse is.  This whole hospital thing was most definitely not in my plans, but even through all the difficulties in making it happen, it happened.  The Lord prevailed!  It is comforting to me to know I can make my plans but if they don't fit with the purpose God has in mind, he will fix that!!

Today is my one month anniversary here at Shriners.  Meaning, I haven't been home in a month!  I do not like that, I do not like that one bit!!  I have 29 days till my first surgery.  The countdown is in the 20s, I remember wishing for it to be there when it was in the 40s.  I'm so thankful I've hit the halfway mark!!  Hopefully this second half moves quickly!
My day today was pretty good.  They fixed my wheelchair so it won't tip over anymore when I'm in it, or not in it.  I got my reevaluation for PT.  I don't have to do heel cord stretches anymore but I have to do hamstring stretches.  They said because I use my feet to "walk" in my wheelchair my hamstrings are getting really strong but also tight.  The y said I need to walk in my walker more, boo!!  But they have to adjust my walker tomorrow because I am now to tall for it!! That is very happy!!!  I had two people visit today who I had never met before.  They started to explain how they know me and I got completely confused.  They know me multiple different ways.  That always happened in Cape but I thought it would stop here.  Nope, i can't escape!  But I don't mind.  They were very sweet.  They brought me lots of snacks!  Then we had teen meal tonight so I got some good dinner.
Today my resident showed me my x rays from last week.  There was no big change in the last week.  That's okay, I've already gotten great results, I wasn't expecting too much more.  She also said I have to get a central line before my surgery.  That's great, more surgery before my surgery.  Although, I don't think I will have to get mine too long before my surgery like some of the other kids did.
I'm hoping I get to sleep in a little tomorrow and not get poked and prodded at 7:30 again!!  Too early!!

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